UK Lowe Syndrome Trust

Lowe Syndrome (OCRL) is a devastating genetic disease that affects thousands of little boys born worldwide born with cataracts (either blind or partially sighted), stunted growth, poor muscle tone, rickets, scoliosis, arthritis (some never walk), kidney problems and mental impairment. In spite of these handicaps the little boys have extremely happy and cheeky personalities. Sadly, few survive to become adults.

For more information please visit.

http://www.lowetrust.com/